Burns affect 11 million people globally. They can lead to long-term disability and be associated with substantial healthcare costs.
There is currently limited funding for research that could provide healthcare professionals with evidence to support the decisions they make when working with burns victims.
Project aims
The aim of this project is to agree the top ten research priorities for global burns care according to patients, carers and clinicians from around the world.
To do this, the project team will use a multilingual survey to explore research priority suggestions and collect experiences of burns care from survivors, carers and healthcare professionals. They will collect additional information during interviews and access other data sources.
The research team will then analyse all this data to identify and collate potential research priority questions. Stakeholders will rank this list of questions in order of importance, using a second online survey. Members of the Global Burns Research Priority Setting Partnership will then determine the shortlist of approximately 20 research priorities that will be taken to a final workshop.
This prioritisation workshop will involve discussions between a representative sample of survivors, carers and healthcare professionals, who will then decide the top 10 research priorities in global burns research.
This project was started by the late Professor Amber Young, through the NIHR Advanced Fellowship grant she was successfully awarded in 2021/22. Bristol BRC’s Professor Jane Blazeby and Mrs Hollie Richards are continuing this work on behalf of their late colleague.
What we hope to achieve
This project will develop research priorities that are most important to burn survivors, their carers and health care professionals around the world. Establishing research priorities will help direct the future of burns research by ensuring research questions focus on stakeholders’ needs and priorities.
We will promote this work through an established network of clinical collaborators and survivor support services, as well as international funders and research organisations.
We will also produce public-facing promotional materials and policy briefing documents, and this work will inform future grant applications.
Partners
James Lind Alliance and multiple international organisations and charities including: